A Larne man is to take part in a 350-mile race across the Arctic Circle to raise funds for and awareness of his sister’s rare illness.
Paramedic Jonny Davies, 33, will face hazards such as polar bears, wolves, moose and ice road truckers to complete the race in aid of the Smith-Magenis Foundation UK and Great Ormond Street hospital.
Jonny, who now lives in Northampton, told The Times he was motivated to take part in the Arctic race after his 27-year-old sister Clare, who attends Larne Adult Centre, was diagnosed with the condition.
He explained: “Smith-Magenis syndrome is a chromosomal disorder. Clare suffers from behavioural problems, learning difficulties, quite severe scoliosis and epilepsy. She wasn’t diagnosed until she was 15 as this is a relatively newly-discovered syndrome.
“I hope to raise awareness as well as funds.”
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